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5-5-18 Powering Through

I have PV and don't look sick but I fight to do everything I do.

on 5 May, 2018

5-2-18 Hay season starts.

The start of the hay season with PV.

on 2 May, 2018

NCCN MPN Patient Webinar.

NCCN is hosting two different MPN Patient webinars at the beginning of may. Dont miss it.

on 28 April, 2018

NCCN Guidelines for MPN Patients.

Found this NCCN Guideline for MPNs today. I think it is a pretty good resource.

on 15 April, 2018

SurviveAll Bands & Bracelets.

SurviveAll Bands is the brain child of Shaylee, my 12 year old daughter. While she had some help ...

on 14 April, 2018

4-14-18: Jakafi is working.

I said that I would make an update after my last doctor visit but time has not allowed. Here it i...

on 14 April, 2018

Our Mission

Our mission here at is to provide a place for people to share their journey with myeloproliferative neoplasms, while at the same time helping to educate about this orphaned blood cancer. 

Read along and share with our family and friends. We welcome you and hope to see you more often.

SurviveAll Bands

SurviveAll Bands & Bracelets


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