General MPN

Read general MPN journal entries from MPN patients friends and family. This area for those that have or are dealing with an MPN but which version, MF, ET, PV has not yet been diagnosed. Basically those with some form of the JAK2 mutation.

SurviveAll Bands & Bracelets.
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by Administrator on 14 April, 2018

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SurviveAll Bands is the brain child of Shaylee, my 12 year old daughter. While she had some help with the name the idea is all hers. She came to me asking if she could start making bracelets to raise awareness for cancer after I was diagnosed with a rare form of blood cancer. Continue reading →

Voices of MPN Live event reflection
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by Chris on 28 March, 2018

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My reflection and take on the Voices of MPN live event in Charlotte, NC Continue reading →

My MPN update 10-4-17 - Iron Deficient
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by Chris on 4 October, 2017

495 Views

Update on my #MPN journey 10-4-17 Continue reading →

Telling Family 9-21-17

by Chris on 20 September, 2017

538 Views

Telling my family I have a form of cancer #MPNBCAM Continue reading →

Fire Light, 9-16-17

by Chris on 16 September, 2017

844 Views

Twice now, I have found myself almost in tears. I say almost because mostly I hold them back to be strong for my family. I am hesitant to write about this as my family will be following along, and for me it shows a vulnerability that I am not used to sharing. Though, I am committed to this journal and felt that I should make an entry. The first since my diagnosis, was late at night earlier this week, everyone was asleep and I was still awake. I was watching "Wedding Crashers" with Owen Wilson of all things. The movie is absolutely hilarious but towards the end when the father is talking to the daughter while attempting to pick out a floral arrangement there was a soft point, and my mind started running away with itself, even though my Doc says that I should expect a long life as I am young and my MPN was caught early. I started thinking, am I going to have these types of moments with my daughter, am I going to be there when it's time to walk her down the aisle? Even ... Continue reading →

The beginning of my MPN
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by Chris on 15 September, 2017

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My story of how my MPN was found. Continue reading →

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