Articles by April, 2018

NCCN MPN Patient Webinar.
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by Administrator on 28 April, 2018

MPN Information

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NCCN is hosting two different MPN Patient webinars at the beginning of may. Dont miss it. Continue reading →

NCCN Guidelines for MPN Patients.
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by Administrator on 15 April, 2018

MPN Information

1306 Views

Found this NCCN Guideline for MPNs today. I think it is a pretty good resource. Continue reading →

SurviveAll Bands & Bracelets.
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by Administrator on 14 April, 2018

General MPN

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SurviveAll Bands is the brain child of Shaylee, my 12 year old daughter. While she had some help with the name the idea is all hers. She came to me asking if she could start making bracelets to raise awareness for cancer after I was diagnosed with a rare form of blood cancer. Continue reading →

4-14-18: Jakafi is working.
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by Chris on 14 April, 2018

Polycythemia Vera (PV)

822 Views

I said that I would make an update after my last doctor visit but time has not allowed. Here it is a little bit later but if you have been following along recently I was prescribed Jakafi: Ruxolitnib. This last appointment was the first blood tests since being prescribed. Continue reading →

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