Chris

Chris
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Website gungeek.com
Member since 10 September, 2017
General
Patient Type
MPN Patient
MPN Diagnosis Type.
Gerneral MPN
MPN Diagnosis Date
7 September, 2017
BirthDate
28 June, 1982
Location
ZIP Code
28168
Country
United States
State
North Carolina
City
Vale
One Year with my MPN
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by Chris on 7 September, 2018

Polycythemia Vera (PV)

438 Views

Time for a much overdue update. Today is a special day of sorts., as today marks my one year anniversary of my diagnosis. Happy Birthday to my MPN, Happy Birthday screw you, just kidding, well kind of. Continue reading →

06-30-17 June updates & Cord Blood Storage
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by Chris on 1 July, 2018

Polycythemia Vera (PV)

677 Views

Updates for June how I feel with PV, the new baby and CBR registry. Continue reading →

5-24-18 Updates and Ongoings
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by Chris on 27 May, 2018

Polycythemia Vera (PV)

659 Views

Thursday 5-24-18 was my normal monthly checkup with my oncologist. This visit was both filled with exciting news and some slightly upsetting news. Continue reading →

5-5-18 Powering Through
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by Chris on 5 May, 2018

Polycythemia Vera (PV)

739 Views

I have PV and don't look sick but I fight to do everything I do. Continue reading →

5-2-18 Hay season starts.
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by Chris on 2 May, 2018

Journals

848 Views

The start of the hay season with PV. Continue reading →

4-14-18: Jakafi is working.
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by Chris on 14 April, 2018

Polycythemia Vera (PV)

854 Views

I said that I would make an update after my last doctor visit but time has not allowed. Here it is a little bit later but if you have been following along recently I was prescribed Jakafi: Ruxolitnib. This last appointment was the first blood tests since being prescribed. Continue reading →

Voices of MPN Live event reflection
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by Chris on 28 March, 2018

General MPN

998 Views

My reflection and take on the Voices of MPN live event in Charlotte, NC Continue reading →

2-21-18 We start a new journey
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by Chris on 21 February, 2018

Polycythemia Vera (PV)

1286 Views

Today marked my monthly visit with oncology, Today we start a new journey in this fight. Continue reading →

1-24-18 MPN Catch up and Updates
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by Chris on 24 January, 2018

Polycythemia Vera (PV)

918 Views

It has been a while since my last post thanks to a very busy holiday season. So here is some news, updates and information on my MPN. Continue reading →

Stages of grief? 11-9-17
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by Chris on 9 November, 2017

Polycythemia Vera (PV)

1531 Views

Denial, Anger. Bargaining, Sadness and Acceptance, My stages of grief realized. Continue reading →

NEW ASU/Mayo Clinic Study for MPN Patients
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by Chris on 7 October, 2017

MPN Information

1141 Views

ASU, Mayo Clinic and University of TX are looking for MPN Patients to participate in a new study using yoga Continue reading →

My MPN update 10-4-17 - Iron Deficient
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by Chris on 4 October, 2017

General MPN

482 Views

Update on my #MPN journey 10-4-17 Continue reading →

Telling Family 9-21-17

by Chris on 20 September, 2017

General MPN

531 Views

Telling my family I have a form of cancer #MPNBCAM Continue reading →

Fire Light, 9-16-17

by Chris on 16 September, 2017

General MPN

826 Views

Twice now, I have found myself almost in tears. I say almost because mostly I hold them back to be strong for my family. I am hesitant to write about this as my family will be following along, and for me it shows a vulnerability that I am not used to sharing. Though, I am committed to this journal and felt that I should make an entry. The first since my diagnosis, was late at night earlier this week, everyone was asleep and I was still awake. I was watching "Wedding Crashers" with Owen Wilson of all things. The movie is absolutely hilarious but towards the end when the father is talking to the daughter while attempting to pick out a floral arrangement there was a soft point, and my mind started running away with itself, even though my Doc says that I should expect a long life as I am young and my MPN was caught early. I started thinking, am I going to have these types of moments with my daughter, am I going to be there when it's time to walk her down the aisle? Even ... Continue reading →

The beginning of my MPN
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by Chris on 15 September, 2017

General MPN

528 Views

My story of how my MPN was found. Continue reading →

Hello and Welcome
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by Chris on 14 September, 2017

Site Information

478 Views

Hello and welcome. Continue reading →

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