|Member since||10 September, 2017|
Time for a much overdue update. Today is a special day of sorts., as today marks my one year anniversary of my diagnosis. Happy Birthday to my MPN, Happy Birthday screw you, just kidding, well kind of. Continue reading →
I said that I would make an update after my last doctor visit but time has not allowed. Here it is a little bit later but if you have been following along recently I was prescribed Jakafi: Ruxolitnib. This last appointment was the first blood tests since being prescribed. Continue reading →
Twice now, I have found myself almost in tears. I say almost because mostly I hold them back to be strong for my family. I am hesitant to write about this as my family will be following along, and for me it shows a vulnerability that I am not used to sharing. Though, I am committed to this journal and felt that I should make an entry. The first since my diagnosis, was late at night earlier this week, everyone was asleep and I was still awake. I was watching "Wedding Crashers" with Owen Wilson of all things. The movie is absolutely hilarious but towards the end when the father is talking to the daughter while attempting to pick out a floral arrangement there was a soft point, and my mind started running away with itself, even though my Doc says that I should expect a long life as I am young and my MPN was caught early. I started thinking, am I going to have these types of moments with my daughter, am I going to be there when it's time to walk her down the aisle? Even ... Continue reading →
Other MPN Resources.
Denial, Anger. Bargaining, Sadness and Acceptance, My stages of grief realized.
Found this NCCN Guideline for MPNs today. I think it is a pretty good resource.
Today marked my monthly visit with oncology, Today we start a new journey in this fight.
Welcome to the new MPN Journal site.
ASU, Mayo Clinic and University of TX are looking for MPN Patients to participate in a new study using yoga