Powerful Features at Your Fingertips

Symptom Tracking

Record your symptoms daily, weekly, or monthly to discover relevant trends and patterns specific to your MPN journey.

Medication Management

Log your medication usage and adherence to analyze effects and side effects with easy-to-read visualizations.

Lab Data Registration

Add your blood values and other lab results for additional insights and track changes over time.

Mental Health Tracking

Monitor your mental well-being and the impact of MPN on your daily life with specialized assessment tools.

Lifestyle Monitoring

Record factors such as nutrition, exercise, and stress to discover their impact on your disease progression.

Side Effect Reporting

Report side effects and track them alongside your symptoms for a complete health picture.

Why This App Matters for You

As an MPN patient, gaining insights into your condition can significantly improve your quality of life and treatment outcomes.

Better Understand Your Treatment

Clearly see the effect of medication on your symptoms through personalized data visualization.

Lifestyle Impact Analysis

Map the influence of lifestyle factors on your disease progression to make informed decisions.

Symptom vs. Side Effect Clarity

Distinguish between medication side effects and disease symptoms with advanced tracking tools.

Correlation Insights

See how medications, symptoms, and laboratory values interact and relate to each other.

Research Contribution

Contribute anonymously to important research that can lead to better treatments and care for all MPN patients.

Developed By Patients, For Patients

The MPN Journal was created by John Hoogland, Dolf van den Berg, and Remco van Haaren — all MPN patients themselves. Their personal experience with the daily challenges of living with a Myeloproliferative Neoplasm (MPN) inspired them to develop this unique tool to support others on a similar journey.

Designed with ease of use in mind, the MPN Journal is a multilingual platform available in Danish, Dutch, English, Finnish, French, German, Italian, Norwegian, Portugese, Spanish and Swedish. It's fully web-based, meaning you can access it from any device — smartphone, tablet, or computer — without the need to download an app. Whether you're at home or on the go, your journal is always at your fingertips.

By using the MPN Journal, you not only gain valuable insights and control over your own health, but you also become part of a global community dedicated to improving MPN care and outcomes around the world.

Start Your Journal Today

Join thousands of MPN patients who are actively taking control of their health journey while making a real difference in the future of MPN care.

By consistently tracking your symptoms, treatments, and experiences, you contribute valuable insights that help uncover important patterns in MPNs — patterns that can lead to earlier interventions, better treatments, and an improved quality of life for everyone affected.

Your participation not only empowers you with a clearer understanding of your own condition, but also fuels groundbreaking research that benefits the entire global MPN community. Together, we’re building a brighter, healthier future — one journal entry at a time.

News & Events

MPN World-Transforming Research Presented at EURO-NET 2025

At the 17th EURO-NET MPN&MPNr Meeting (May 14–16, 2025, in Zürich), John Hoogland presented new insights into how data can reshape our understanding of MPN patients.

"MPN World-Transforming Research: A Data-Driven Approach to Patient Profiles – Integrating Symptoms, Medications, Lab Results, and Psychosomatic Burden" explored an integrative model that connects clinical data with patient-reported outcomes and psychosomatic dimensions.

This approach highlights how leveraging real-world data can reveal deeper patterns in patient profiles—helping clinicians and researchers move toward more personalized and precise MPN care.

👉 Click here for more information about the EURO-NET 2025 event.

How Can We Help You?

Whether you're living with MPN, supporting a loved one, conducting research, or working in healthcare — your voice truly matters to us.

We are deeply committed to building a stronger, more connected MPN community, and that begins with listening carefully to your needs and experiences. Whether you're seeking information, want to share your personal story, have a potential collaboration in mind, or simply need someone to talk to — we are here to provide support and respond promptly.

Below, you’ll find a Contact Us button, which opens our chatbot. This easy-to-use tool allows you to send us any questions you may have, request support, or express your interest in partnering with us. We encourage you to reach out through this channel so we can assist you in the best possible way.